I must warn you, this is an extremely sad post. So if you are not interested in feeling down, please skip this one and come back for my next post.
I have been truly, truly heartbroken by the passing of Layla Grace Marsh. If you don't know her story you can read her mom's blog at
www.LaylaGrace.org or read her mom's Twitter posts at
http://twitter.comlaylagrace. But once again, I warn you, it is not for the light hearted.
I have never really used my blog as a diary to just let my feelings out, but I feel the need to today. As I said, I have been struggling with the illness and death of this baby girl and think that I need to let my feelings out.
At the end, which was so terrible, according to her mom and dad's posts and tweets, I was feeling their pain, but only the tiniest fraction of what they must have felt. How do you sit there comforting your dying child? How did her parents take turns comforting her knowing it was the last few days, hours, minutes, they had with their sweet baby girl? And she knew they were there but she could no longer move or talk. How can anyone deal with that? They are very, very strong people.
I also wonder how Layla felt? Was she sad? Was she in so much pain she just wanted it to end? Did she know what was about the happen? Was she comforted knowing the two people who loved her most in this world were there?
I was just wishing for either a sudden miracle, or at least asking for the pain to stop. But when the latter of the two did happen, it didn't help too much. Now the family has to figure out how to move forward. How do you possibly move forward after the death of a child, especially one that was so long and filled with pain and frustration? They all fought so hard for so long and things still ended horribly. Their other two daughters have been away so that Layla could pass at home with just her parents. And Layla's mom was talking about how the younger daughter just won't get it, she will just miss having her little sister around. I think of my two boys and how close they are after only 15 months together. I can't imagine how much they would miss each other, especially if they don't understand why. Layla's mom just tweeted this morning that her younger daughter told the dog not to bark because he would wake up Layla. That is just heart wrenching. Their lives have just been completely changed forever.
There is comfort in the fact that there is no more pain, I just wish, along with everyone else, that the pain had stopped because the cancer went away. Her mom was wondering who would take care of her baby in heaven, and that is a great question. I am not a person of true faith, but am beginning to understand why people are. It would be so much easier for me if I believed that this baby was happy in heaven right now. An angel looking down on us. But still, wouldn't she be looking down at her family wishing she was with them? As you can see, this is just truly breaking my heart. And I have never met Layla or her family.
Some of my friends who I have confided in about my feelings have said one positive is that her death brought a lot of good. So many people, including me, are going to remember her and live better lives. I will be a better mother now. People are more aware of this horrible cancer now. But I still don't believe that the cost was worth the means on this one.
Please do not feel as though you have to comment. I know this is an extremely depressing post and am questioning way too much. And I am sure some people will wonder why I am making such a big fuss over someone I don't know. But I know I am not alone. Reading many other blog posts about Layla and tweets let me know that she has touched many, many people the way she touched me.
Just keep this angel and her family in your thoughts and prayers.
******** Update: I felt a little weird pushing "post" on this one because it was so candid. These are my true thoughts. I have already gotten some great feedback, mostly private. And I want everyone to know I am ok, not depressed or anything, just sad. And I am not alone! I have talked to so many other moms yesterday and today who are feeling exactly the same, if not worse. Several people couldn't even sleep last night and can't eat. I think another problem I have is that I like to make everyone happy. I hate when I can't help make someone feel better. And I know that in this situation there is nothing I can do, nothing. Also, I was following Layla's story for a while, so it has been a long sad journey, with a heart breaking end. ************